The Last and the Previous Year of Life in Europe: A Comparative Analysis of Care Received and Daily Living Limitations
DOI:
https://doi.org/10.12974/2309-6128.2015.03.01.1Keywords:
ADL limitations, IADL limitations, caregiving, end of life, last year of life.Abstract
Objectives: We analyse the need for and the provision of care to individuals aged at least 50 years in their last year of life as compared with the previous year of life.
Methods: We explain the functional status in ordered logit and who provides care in multinomial logit using the data from the Survey of Health, Ageing and Retirement in Europe. Results: We find a significant and heterogeneous in the cause of death increase in the number of daily living limitations between the previous and the last year of life. The percentage of respondents receiving care increases and more sources of care are observed between the previous and the last year of life. Regional disparities decline in the last year of life.
Discussion: Correlates to functional status and care receipt differ between the last and the previous year of life. These differences are specific to region and cause of death.
References
Romøren TI. Last years of long lives: The Larvik Study. London: Routledge 2003.
Gill TM, Gahbauer EA, Han L and Allore HG. Trajectories of disability in the last year of life. N Engl J Med 2010; 362(13): 1173-1180. http://dx.doi.org/10.1056/NEJMoa0909087
Lunney JR, Lynn J, Foley DJ, Lipson S and Guralnik JM. Patterns of functional decline at the end of life. JAMA J Am Med Assoc 2003; 289(18): 2387-2392. http://dx.doi.org/10.1001/jama.289.18.2387
Covinsky KE, Eng C, Lui LY, Sands L and Yaffe K. The last 2 years of life: Functional trajectories of frail older people. J Am Geriatr Soc 2003; 51(4): 492-498. http://dx.doi.org/10.1046/j.1532-5415.2003.51157.x
Singer PA, Martin DK and Kelner M. Quality end-of-life care. Patient's perspectives. JAMA J Am Med Assoc 1999; 281(2): 163-168. http://dx.doi.org/10.1001/jama.281.2.163
Teno JM, Clarridge BR, Casey V, Welch LC, Wetle T, Shield R and Mor V. Family perspectives on end-of-life care at the last place of care. JAMA J Am Med Assoc 2004; 291(1): 88-93. http://dx.doi.org/10.1001/jama.291.1.88
Rogers A, Karlsen S and Addington-Hall J. 'All the services were excellent. It is when the human element comes in that things go wrong': Dissatisfaction with hospital care in the last year of life. J Adv Nurs 2008; 31(4): 768-774. http://dx.doi.org/10.1046/j.1365-2648.2000.01347.x
Greiner KA, Perera S and Ahluwalia JS. Hospice usage by minorities in the last year of life: Results from the National Mortality Followback Survey. J Am Geriatr Soc 2003; 51(7): 970-978. http://dx.doi.org/10.1046/j.1365-2389.2003.51310.x
Hank K and Jürges F. The last year of life in Europe: Regional variations in functional status and sources of support. Ageing Soc 2010; 30(6): 1041-1054. http://dx.doi.org/10.1017/S0144686X10000280
Prendergast TJ, Claessens MT and Luce JM. A national survey of end-of-life care for critically ill patients. Am J Respir Crit Care Med 1998; 158(4): 1163-1167. http://dx.doi.org/10.1164/ajrccm.158.4.9801108
Emanuel EJ, Ash A, Yu W, Gazelle G, Levinsky NG, Saynina O, McClellan M and Moskowitz M. Managed care, hospice use, site of death, and medical expenditures in the last year of life. Arch Intern Med 2002; 162(15): 1722-1728. http://dx.doi.org/10.1001/archinte.162.15.1722
Polder JJ, Barendregt JJ and van Oers H. Health care costs in the last year of life - the Dutch experience. Soc Sci Med 2006; 63(7): 1720-1731. http://dx.doi.org/10.1016/j.socscimed.2006.04.018
Jakobsson E, Johnsson T, Persson LO and Gaston-Johansson F. End-of-life in a Swedish population: Demographics, social conditions and characteristics of places of death. Scand J Caring Sci 2006; 20(1): 10-17. http://dx.doi.org/10.1111/j.1471-6712.2006.00374.x
Karmel R, Gibson D, Anderson P, Wells Y and Duckett S. Care trajectories through community and residential aged care services: Disease effects. Ageing Soc 2012; 32(8): 1428-1445. http://dx.doi.org/10.1017/S0144686X11001231
Elkington H, White P, Addington-Hall J, Higgs R and Pettinari C. The last year of life of COPD: A qualitative study of symptoms and services. Resp Med 2004; 98(5): 439-445. http://dx.doi.org/10.1016/j.rmed.2003.11.006
van der Heide A, Deliens L, Faisst K, Nilstun T, Norup M, Paci E, van der Wal G and van der Maas PJ. End-of-life decision-making in six European countries: Descriptive study. The Lancet 2003; 362(9381): 345-350. http://dx.doi.org/10.1016/S0140-6736(03)14019-6
Hakim RB, Teno JM, Harrell FE, Knaus WA, Wenger N, Phillips RS, Layde P, Califf R, Connors AF and Lynn J. Factors associated with do-not-resuscitate orders: Patients' preferences, prognoses, and physicians' judgments. Ann Intern Med 1996; 125(4): 284-293. http://dx.doi.org/10.7326/0003-4819-125-4-199608150- 00005
Börsch-Supan A, Brandt M, Hunkler C, Kneip T, Korbmacher J, Malter F, Schaan B, Stuck S and Zuber S. Data resource profile: The Survey of Health, Ageing and Retirement in Europe (SHARE). Int J Epidemiol 2013; 42(4): 992-1001. http://dx.doi.org/10.1093/ije/dyt088
Esping-Andersen G. The three worlds of welfare capitalism. Cambridge: Polity Press 1990.
Centre for Economic Analysis. Health, work and life-style of the 50 + population in Poland in comparison with other European countries. 2009, Retrieved from http://www.cenea. org.pl/images/stories/pdf/researchnotes/cenea_rn_02en09.p df.
Fenger HJM. Welfare regimes in Central and Eastern Europe: Incorporating post-communist countries in a welfare regime typology. Contemp Issues Ideas Soc Sci 2007; 3(2): 1-30.
Guralnik JM, LaCroix AZ, Branch LG, Kasl SV and Wallace RB. Morbidity and disability in older persons in the years prior to death. Am J Public Health 1991; 81(4): 443-447. http://dx.doi.org/10.2105/AJPH.81.4.443
Attias-Donfut C, Ogg J and Wolff FC. European patterns of intergenerational financial and time transfers. Eur J Ageing 2005; 2(3): 161-173. http://dx.doi.org/10.1007/s10433-005-0008-7
Haney LA and Pollard L. Families of a new world: Gender, politics and state development in a global context. New York: Routledge 2003.
Kohli M, Künemund H and Lüdicke J. Family structure, proximity and contact. In: Börsch-Supan A, Brugiavini H, Jürges J, Mackenbach J, Siegrist J, Weber G. Eds. Health, ageing and retirement in Europe – First results from the Survey of Health, Ageing and Retirement in Europe. Mannheim: Mannheim Research Institute for the Economics of Aging 2005; 164-170.
Boyle P and Ferlay J. Cancer incidence and mortality in Europe. Ann Oncol 2004; 16(3): 481-488. http://dx.doi.org/10.1093/annonc/mdi098
Motel-Klingebiel A, Tesch-Roemer C and von Kondratowitz HJ. Welfare states do not crowd out the family: Evidence for mixed responsibility from comparative analyses. Ageing Soc 2005; 25(6): 863-882. http://dx.doi.org/10.1017/S0144686X05003971
Teno JM, Weitzen S, Fennell ML and Mor V. Dying trajectory in the last year of life: Does cancer trajectory fit other diseases? J Palliat Med 2001; 4(4): 457-464. http://dx.doi.org/10.1089/10966210175338159
