Social Support Perceived by Family and Caregivers of Children with Cancer
DOI:
https://doi.org/10.12974/2311-8687.2019.07.4Keywords:
Child, Family, Neoplasms, Social support.Abstract
Social support to caregivers and family members can contribute to the construction of coping strategies in pediatric cancer diagnosis scenarios. To identify the state of the current literature concerning social support perceived by families and caregivers of children with cancer was the aim of this study. This is an integrative literature review performed in the LILACS and PubMed databases. We selected 10 articles that met the following inclusion criteria: academic articles published from 2014 to 2018, in English, Spanish and/or Portuguese, available in full and as open access, and addressing social support to the family and/or caregivers of children with cancer. The content of the selected articles was organized into the themes “Social support from interpersonal relationships” and “Social support from the health network”, which consider social support as a relevant and significant element in coping with the context of the family living the experience of having a child with cancer. The selected studies showed family members, parents of other children experiencing a similar problem, co-workers, as well as teachers and colleagues of other children as important sources of support. The health network was also an essential source of support, in the assistance, information, instruction, emotional and mediation dimensions of the community resource network. Thus, according to this integrative review, caregivers and family can be supported in different ways, both material and immaterial, and by people who belong to the most diverse social roles.
References
Bray F, Ferlay J, Soerjomataram I, Siegel RL, Torre LA, Jemal A. Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA Cancer J Clin 2018; 68(6): 394- 424. https://doi.org/10.3322/caac.21492 DOI: https://doi.org/10.3322/caac.21492
Kozan L, Wanderbroocke ACNS, Polli GM. Apoio social entre acompanhantes de crianças hospitalizadas em uma unidade de hematopediatria. Psicol hosp 2016; 14(1): 53-78.
Schardong F, Cardoso NO, Mazoni CG. Estratégias de enfrentamento e a ansiedade dos pais de crianças com câncer - uma revisão integrativa. Rev SBPH 2017; 20(1): 32- 54.
Almico T, Faro A. Enfrentamento de cuidadores de crianças com câncer em processo de quimioterapia. Psic, Saúde & Doenças 2014; 15(3): 723-37. https://doi.org/10.15309/14psd150313 DOI: https://doi.org/10.15309/14psd150313
Kakushi LE, Évora YDM. Social networking in nursing education: integrative literature review. Rev Lat Am Enfermagem 2016; 24: e2709. https://doi.org/10.1590/1518-8345.1055.2709 DOI: https://doi.org/10.1590/1518-8345.1055.2709
Mendes KDS, Silveira RCCP, Galvão CM. Revisão integrativa: método de pesquisa para a incorporação de evidências na saúde e na enfermagem. Texto Contexto Enferm 2008; 17(4): 758-64. https://doi.org/10.1590/S0104-07072008000400018 DOI: https://doi.org/10.1590/S0104-07072008000400018
Minayo MCS. O desafio do conhecimento: pesquisa qualitativa em saúde. 12th ed. São Paulo: Hucitec 2010.
Marques G, Araújo B, Sá L. The impact of cancer on healthy siblings. Rev Bras Enferm 2018; 71(4): 1992-7. https://doi.org/10.1590/0034-7167-2016-0449 DOI: https://doi.org/10.1590/0034-7167-2016-0449
Marques G. The family of the child with cancer: socioeconomic needs. Rev Gaucha Enferm 2017; 38(4): e2016-0078. https://doi.org/10.1590/1983-1447.2017.04.2016-0078 DOI: https://doi.org/10.1590/1983-1447.2017.04.2016-0078
Harper FWK, Peterson AM, Albrecht TL, Taub JW, Phipps S, Penner LA. Satisfaction with support versus size of network: differential effects of social support on psychological distress in parents of pediatric cancer patients. Psychooncology 2016; 25(5): 551-8. https://doi.org/10.1002/pon.3863 DOI: https://doi.org/10.1002/pon.3863
Ångström-Brännström C, Engvali G, Mullaney T, Nilsson K, Wickart-Johansson G, Svärd A-M, et al. Children undergoing radiotherapy: swedish parents' experiences and suggestions for improvement. PLoS ONE 2015; 10(10): e0141086. https://doi.org/10.1371/journal.pone.0141086 DOI: https://doi.org/10.1371/journal.pone.0141086
Gage-Bouchard EA, LaValley S, Panagakis C, Shelton RC. The architecture of support: the activation of pre-existing ties and formation of new ties for tailored support. Soc Sci Med 2015; 134: 59-65. https://doi.org/10.1016/j.socscimed.2015.04.003 DOI: https://doi.org/10.1016/j.socscimed.2015.04.003
Chen J, Liu Y, Cai Q-Q, Liu Y-M, Wang T, Zhang K, et al. Type D personality parents of children with leukemia tend to experience anxiety: the mediating effects of social support and coping style. Medicine 2015; 94(10): e627. https://doi.org/10.1097/MD.0000000000000627 DOI: https://doi.org/10.1097/MD.0000000000000627
Alderfer MA, Stanley C, Conroy R, Long KA, Fairclough DL, Kazak AE, et al. The social functioning of siblings of children with cancer: a multi-informant investigation. J Pediatr Psychol 2015; 40(3): 309-19. https://doi.org/10.1093/jpepsy/jsu079 DOI: https://doi.org/10.1093/jpepsy/jsu079
Rosenberg AR, Postier A, Osenga K, Kreicbergs U, Neville B, Dussel V, et al. Long-term psychosocial outcomes among bereaved siblings of children with cancer. J Pain Symptom Manage 2015; 49(1): 55-65. https://doi.org/10.1016/j.jpainsymman.2014.05.006 DOI: https://doi.org/10.1016/j.jpainsymman.2014.05.006
Andrade SFO, Alves RF, Melo MO, Rodrigues MJ. Qualidade de vida e sobrecarga de cuidadores de crianças com câncer. Psicol cienc prof 2014; 34(4): 1014-31. https://doi.org/10.1590/1982-370002332013 DOI: https://doi.org/10.1590/1982-370002332013
Neu M, Matthews E, King N. Exploring sleep-wake experiences of mothers during maintenance therapy for their child's acute lymphoblastic leukemia. J Pediatr Nurs 2014; 29(5): 410-21. https://doi.org/10.1016/j.pedn.2014.01.002 DOI: https://doi.org/10.1016/j.pedn.2014.01.002
Sandor ERS, Marcon SS, Ferreira NMLA, Dupas G. Demanda de apoio social pela família da criança com paralisia cerebral. Rev eletrônica enferm 2014; 16(2): 417- 25. https://doi.org/10.5216/ree.v16i2.21112 DOI: https://doi.org/10.5216/ree.v16i2.21112
Seibel BL, Falceto OG, Hollist CS, Springer P, Fernandes CLC, Koller SH. Rede de apoio social e funcionamento familiar: estudo longitudinal sobre famílias em vulnerabilidade social. Pensando fam 2017; 21(1): 120-36.
Silva GV, Moraes DEB, Konstantyner T, Leite HP. Apoio social e qualidade de vida de famílias de crianças com cardiopatia congênita. Cien Saude Colet 2018.
Silveira AO, Bernardes RC, Wernet M, Pontes TB, Silva AAO. Family's social support network and the promotion of child development. REFACS (online) 2016; 4(1): 6-16. https://doi.org/10.18554/refacs.v4i1.1528 DOI: https://doi.org/10.18554/refacs.v4i1.1528
Kamei T, Takahashi K, Omori J, Arimori N, Hishinuma M, Asahara K, et al. Toward advanced nursing practice along with people-centered care partnership model for sustainable universal health coverage and universal access to health. Rev Lat Am Enfermagem 2017; 25: e2839. https://doi.org/10.1590/1518-8345.1657.2839 DOI: https://doi.org/10.1590/1518-8345.1657.2839
Santos JS, Andrade RD, Pina JC, Veríssimo MLÓR, Chiesa AM, Mello DF. Child care and health rights: perspectives of adolescent mothers. Rev Esc Enferm USP 2015; 49(5): 732- 8. https://doi.org/10.1590/S0080-623420150000500004 DOI: https://doi.org/10.1590/S0080-623420150000500004
Juliano MCC, Yunes MAM. Reflections on the social support network as a mechanism for the protection and promotion of resilience. Ambient soc 2014; 17(3): 135-52. https://doi.org/10.1590/S1414-753X2014000300009 DOI: https://doi.org/10.1590/S1414-753X2014000300009
Nóbrega VM, Silva MEA, Fernandes LTB, Viera CS, Reichert APS, Collet N. Chronic disease in childhood and adolescence: continuity of care in the Health Care Network. Rev Esc Enferm USP 2017; 51: e03226. https://doi.org/10.1590/s1980-220x2016042503226 DOI: https://doi.org/10.1590/s1980-220x2016042503226
